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	<title>Jeroen&#039;s weblog &#187; GGD</title>
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		<title>Dutch GGD claims survey to be anonymous, but it&#8217;s not</title>
		<link>http://blog.hendricksen.eu/2010/05/30/dutch-ggd-claims-survey-to-be-anonymous-but-its-not/</link>
		<comments>http://blog.hendricksen.eu/2010/05/30/dutch-ggd-claims-survey-to-be-anonymous-but-its-not/#comments</comments>
		<pubDate>Sun, 30 May 2010 14:31:33 +0000</pubDate>
		<dc:creator>Jeroen</dc:creator>
				<category><![CDATA[Privacy]]></category>
		<category><![CDATA[anonymous]]></category>
		<category><![CDATA[BSN]]></category>
		<category><![CDATA[Gelderland]]></category>
		<category><![CDATA[GGD]]></category>
		<category><![CDATA[medical]]></category>
		<category><![CDATA[survey]]></category>
		<guid isPermaLink="false">http://blog.hendricksen.eu/?p=26</guid>
		<description><![CDATA[The Dutch GGD claims you stay anonymous when you fill in their survey where they ask you about private medical information, but it's not anonymous! <a href="http://blog.hendricksen.eu/2010/05/30/dutch-ggd-claims-survey-to-be-anonymous-but-its-not/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
			<content:encoded><![CDATA[<p>The Dutch healthcare organisation (<a href="http://www.ggd.nl/" target="_blank">GGD</a>) is an organisation funded by the Dutch government that is concerned with the health of people in the Netherlands. They want to know about the health of people in the province of <a title="Gelderland" href="http://en.wikipedia.org/wiki/Gelderland" target="_blank">Gelderland</a>, so they decided to start a survey.<br />
I agree, statistics, like from the <a title="Dutch bureau for statistics" href="http://www.cbs.nl" target="_blank">Dutch statistics bureau</a> need to come from somewhere, and in this case it is important they get it from a very diverse an relatively large population.</p>
<p><strong>How it works</strong><br />
So how does the GGD do that? Well, they first they send you a letter with login data. You can login on <a href="http://ggddoetonderzoek.nl/" target="_blank">their website</a> (not using SSL!) using a predefined code and you are ready to fill in the survey. And to be certain you didn&#8217;t forget, they send you the survey on paper, so people with no access or know how of the Internet can complete the survey as well.</p>
<p><strong>Sensitive information</strong><br />
The questions they ask you are about your birth year, marital status, education, health, alcohol use, smoking, drug use, eating habits, social environment, violence at home and your work. A lot of sensitive information, some of which you probably don&#8217;t even voluntarily tell to your doctor, unless absolutely necessary.</p>
<p><strong>Anonymity</strong><br />
Of course, you don&#8217;t have to be afraid that the data you fill in is connected to you as a person, because they offer you to conduct the survey anonymously. So, the GGD offers you a way to keep your privacy. They intent to do this by allowing you to <em>rip off the first paper of the survey</em> before sending it to them. Well ok, I ripp off the first page and my privacy is guaranteed. But then I started wondering what all the the bar codes and identification numbers are doing on each of the pages? (take a look at the first survey page snapshot below)</p>
<p><strong>Anonymous or not anonymous, that&#8217;s the question</strong><br />
The thing that really scares me about this survey is the fact that they lie to the participants. This is not an anonymous survey, at least not to my definition of &#8220;anonymous&#8221;.<br />
They GGD even mistakenly proofs to you that their survey is not really anonymous. How? Because they recently sent me a letter asking why I didn&#8217;t fill in the survey. Err wait, I could have submitted it to them anonymously (remember), so how could they possibly know I didn&#8217;t sent it to them or filled it in online already..? That&#8217;s the point. If it was really anonymous, they shouldn&#8217;t have known whether I sent them the survey!</p>
<p><strong>My opinion</strong><br />
I think the GGD screwed up. Not because their survey was bad, nor is their intention to conduct this survey, but solely because they claim that it is anonymous, which it is certainly not! If they ever want to gain my trust again, or even receive sensitive information about myself, they should define what they mean by &#8220;anonymous&#8221; and provide a proper and clear privacy policy. Lying is not a good basis for gaining consumer trust.</p>
<p><strong>References (the letters)</strong></p>
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								<img title="Reminder letter GGD survey" alt="Reminder letter GGD survey" src="http://blog.hendricksen.eu/wp-content/gallery/ggdsurvey/thumbs/thumbs_reminderletterggdsurvey.jpg" width="100" height="75" />
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								<img title="The survey's first page" alt="The survey's first page" src="http://blog.hendricksen.eu/wp-content/gallery/ggdsurvey/thumbs/thumbs_questionpageggdsurvey.jpg" width="100" height="75" />
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